News of the WeekClinical Research

Company Plans to Bank Human DNA Profiles

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Science  26 Jan 2001:
Vol. 291, Issue 5504, pp. 575
DOI: 10.1126/science.291.5504.575A

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Summary

Last week, a for-profit group announced a plan to act as an intermediary between patients and researchers: Individuals would let the company store their genetic information in its confidential database for use in clinical research, and the company would communicate with them over the Internet to ensure that informed consent is given for any use of the data. The company has teamed up with the Memorial Sloan-Kettering Cancer Center in New York City to test the scheme.