Policy ForumRESEARCH ETHICS

The Complexities of Genomic Identifiability

Science  18 Jan 2013:
Vol. 339, Issue 6117, pp. 275-276
DOI: 10.1126/science.1234593

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Summary

Sharing research data has long been fundamental to the advancement of science. In today's scientific culture, making research data available broadly and efficiently via the internet has become the standard for many data types, including genomic and some other "omic"-type data produced by high-throughput methods. The acceleration of research progress and the resulting public benefit achieved through such broad data-sharing have been transformative for the scientific enterprise (13). However, sharing data generated from human research participants must be done in a manner that appropriately protects participant interests.

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