News & AnalysisHuman Genetics

Agency Nixes deCODE's New Data-Mining Plan

Science  21 Jun 2013:
Vol. 340, Issue 6139, pp. 1388-1389
DOI: 10.1126/science.340.6139.1388

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Summary

The controversial company known for mining the DNA of Iceland's population to find links between genes and diseases, deCODE genetics, has hit another rough patch. A national agency that oversees data privacy in Iceland has rejected a request from deCODE to allow it to apply new computational methods to estimate the genotypes of 280,000 Icelanders who have never agreed to take part in the company's research and then link the data to hospital records. The Data Protection Authority ruled that the company must first obtain individuals' informed consent.