In DepthClinical Trials

A new portal for patient data

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Science  20 Jul 2018:
Vol. 361, Issue 6399, pp. 212
DOI: 10.1126/science.361.6399.212

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Summary

Under pressure to be more transparent about the results of drug testing studies, some companies have begun to share anonymized patient data from clinical trials with approved researchers on secure websites. An online platform launched this week aims to expand such efforts by offering a one-stop clearinghouse for those seeking to mine these data for new insights. The platform, created by Vivli, a nonprofit based in Cambridge, Massachusetts, debuts with access to more than 4000 clinical trial data sets from eight companies and nonprofits. It also features tools to help researchers combine and analyze the data. Many researchers and policy analysts believe that sharing raw data on individual patients, stripped of identifying information, would be valuable.

  • * With reporting by Elizabeth Gamillo.