LINKS: Keeping It Confidential

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Science  12 Sep 2003:
Vol. 301, Issue 5639, pp. 1449
DOI: 10.1126/science.301.5639.1449c

The Internet makes harvesting and sharing data a snap, but it also boosts the risk that private information, such as patient identities, can fall into the wrong hands. Concerned that such disclosures could undermine research, the American Statistical Association rounded up these resources on safeguarding confidential health and other electronic data. The site presents annotated links to more than 100 sets of guidelines, recommendations, papers, conference proceedings, and reports. For instance, you can find out what laws and rules govern data disclosure and privacy for various agencies of the U.S. government and for international information-gathering organizations such as the United Nations. Another section explores statistical tricks for ensuring data anonymity, such as inserting noise into measurements to blur their origin.

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