Policy ForumMedicine

Reestablishing the Researcher-Patient Compact

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Science  11 May 2007:
Vol. 316, Issue 5826, pp. 836-837
DOI: 10.1126/science.1135489

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  • Response to E-Letter by Lane

    We concur fully with Dr. Lane’s concern regarding communication to patients of results that are not “clinical grade.” Indeed, we have published elsewhere (1) about the growing risks of incidental findings in the massively parallel testing made possible in the genomic era. Notwithstanding, in the case of Informed Cohort, we did not propose to directly send research results to study participants. Furthermore, reporting p...

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    Competing Interests: None declared.
  • Unanswered Questions About Data

    The Policy Forum “Reestablishing the researcher-patient compact” (I. S. Kohane et al., 11 May 2007, p. 836) discusses how the current regulatory climate has placed barriers between research participants and investigators. The authors discuss a new model, the Informed Cohort, wherein participants give informed consent to participate in a biobank, control the amount of their medical information available to investigators...

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    Competing Interests: None declared.

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